What disease did Mattie Stepanek have?

dysautonomic mitochondrial myopathy
Anyone who doesn’t know Stepanek might think she leads miserable life, she said. She suffers from the same disease — dysautonomic mitochondrial myopathy — that killed all four of her children. Stepanek’s three other children, Katie, Jamie and Stevie, Mattie’s older siblings, all died before the age of 4.

What is Mattie Stepanek known for?

Matthew Joseph Thaddeus Stepanek (July 17, 1990 – June 22, 2004), known as Mattie J.T. Stepanek, was an American poet (or, as he wanted to be remembered, “a poet, a peacemaker, and a philosopher who played”) who published seven best-selling books of poetry and peace essays.

Was Mattie Stepanek a black belt?

Mattie described himself on his Web site as a practical joker who had earned a first-degree black belt in the martial art hapkido before he had to use a wheelchair.

Was Mattie Stepanek gifted?

Mattie defied medical and developmental odds; not only did he live almost 14 years rather than the handful of hours anticipated early on, he was also developmentally and academically advanced, becoming a gifted writer, a respected teacher, and a spiritual and inspirational speaker.

Where is Jeni Stepanek now?

In addition to her work with Mattie’s Foundation, Jeni is a motivational speaker and a Faculty Associate at a local university. She also serves as a National Vice President for the Muscular Dystrophy Association, a Governor for the We Are Family Foundation.

What is Mattie Stepanek full name?

Matthew Joseph Thaddeus “
Remember to play after every storm. Matthew Joseph Thaddeus “Mattie” Stepanek, the courageous little boy who became a best-selling poet and advocate for muscular dystrophy awareness on network talk shows including “Oprah,” “Larry King Live” and “Good Morning America,” has died. He was 13.

What is Mattie Stepanek complete name?

Mattie J.T. Stepanek
Mattie J.T. Stepanek, a well-respected poet and award-winning peace ambassador, lived a life that was brief in length but powerfully blessed with depth. Born on July 17, 1990, Mattie began creating and sharing Heartsongs at the young age of 3.

Is Mattie Stepanek still living?

June 22, 2004Mattie Stepanek / Date of death